{
  "$type": "site.standard.document",
  "bskyPostRef": {
    "cid": "bafyreiclrqb5nfv4y5ufovp6qozv4yj4e23ega6jvnnewvslzewhdrdae4",
    "uri": "at://did:plc:ao7j73dvzlreip5cqvicnrwm/app.bsky.feed.post/3mlwazguohdv2"
  },
  "coverImage": {
    "$type": "blob",
    "ref": {
      "$link": "bafkreihdvk2dsc6whkzd645lrlafon7fea2rsqdezlv3p2xpgwdegzocpu"
    },
    "mimeType": "image/jpeg",
    "size": 280147
  },
  "path": "/2026/05/15/fda-leadership-rare-disease/",
  "publishedAt": "2026-05-15T19:29:36.000Z",
  "site": "https://www.dailysignal.com",
  "tags": [
    "FDA News",
    "Healthcare & Policy News",
    "Republican Party News",
    "RFK Jr & MAHA News"
  ],
  "textContent": "My 14-year-old son Ryu has a terminal rare disease. We were to travel from Texas to the District of Columbia on May 12 to attend a Senate hearing on the Food and Drug Administration budget. There, Ryu had hoped to meet our senator, Ted Cruz, R-Texas, to shake his hand, and to tell him a...",
  "title": "Dear Incoming FDA Leadership: I Lost My Brothers to a Rare Disease. Please Help My Son."
}